Patient Resources

You will have many questions to ask about your IBD and how PredictSURE IBD™ may fit into your diagnosis and prognosis. Below are several IBD patient resources which we think you could find helpful to extended your knowledge of Crohn’s and colitis. There are millions suffering from IBD around the world everyday. You are not alone.

Understanding your predictive IBD test

For newly diagnosed patients of Crohn’s disease and ulcerative colitis, this leaflet gives you a summary of how PredictSURE IBD™ works and how it could fit into your IBD diagnosis and prognosis.

Crohn’s & Colitis UK

 

CCUK is the UK’s leading charity in the battle against Crohn’s Disease and Ulcerative Colitis. Founded as a patients’ association in 1979, it now has 40,000 members across the UK.

CCUK works to make life better for the 300,000 people in the UK with Crohn’s Disease, Ulcerative Colitis and other forms of IBD.

Crohn’s & Colitis Foundation

The Crohn’s & Colitis Foundation is a US-based, non-profit, volunteer-driven organization dedicated to finding cures for Crohn’s disease and ulcerative colitis, and to improving the quality of life of children and adults affected by these diseases.

The foundation collaborates with healthcare providers to improve IBD quality of care, as well as educating, supporting, and empowering patients and their care givers through patient-centric education and advocacy programs.

European Federation of Crohn’s & Ulcerative Colitis Associations (EFCCA)

The EFCCA is an umbrella organisation representing 36 national Crohn’s and ulcerative colitis (collectively known as inflammatory bowel disease or IBD)  patient associations.  The EFCCA is an organization of people united in its commitment to improve the life of the over 10 million people living with IBD worldwide (3.4 million in Europe alone) and to give them a louder voice and more visibility.

PROFILE Crohn’s Trial

PROFILE is a UK-based, randomised, multi-centre, biomarker-stratified open-label trial in patients newly diagnosed with Crohn’s disease.

PROFILE aims to demonstrate that a prognostic biomarker can enable delivery of personalised therapy in Crohn’s disease, and that this improves clinical outcomes.

To learn more and get involved, click here

Social media for IBD patients

There are many support groups which have various social media platforms for sufferers of IBD who, just like you, share their experiences and give help and guidance on living with Crohn’s and colitis. NOTICE: We are not responsible for the comments made by any of the sites below or by any of the people that use the sites.

Crohn’s and Colitis Canada

My Crohn’s and Colitis Team

Crohn’s and Colitis Awareness

Crohn’s and Colitis Australia